← Return to What exactly does low dose naltroxene (LDN) do for fibromyalgia?

Discussion
Comment receiving replies
Profile picture for jeannesf1 @jeannesf1

@tbirddonna oh boy. Now of course this was only my experience. After taking it for over 12 years decided to get off Cymbalta. Then start LDN. Doctor weaned me off it. The mental side effects were and still are devastating. High anxiety, scared of the simplest things, nightmares, crying all through the day and night for everything. After about 6 weeks most of the side effects went away except for the crying it only got a tiny bit better. It’s debilitating. 2 cousins and 1 aunt have passed since then I didn’t go to their funerals because I would have cried all through it and more than any other persons there. I can’t stop it as hard as I try. Not only crying but the full blown emotions, I feel emotionally devastated. It exhausts me. If I see a dead animal even if it’s a worm in the garden I start crying devastated because this worm never had a chance. (I don’t like worms). Went to my friend’s nephew’s funeral whom I didn’t know and cried more than anyone else. I went there to support my friend and she ended up consoling me. Songs make me cry full blown. It’s ridiculous. I certainly wasn’t like that before. So it’s hindered my social life and I fear having a conversation with anyone because the slightest thing will set me off. I’m embarrassed and yet unable to hold it back. This month it’s been a year since I stopped it. BUT since I stopped it I get up early (for me, I’m retired ) 8am-9am. When I was on Cymbalta I got up anywhere from 1pm to 5pm. I thought it was fibromyalgia fatigue until I got off Cymbalta. BUT when I first took it I was so bad from fibro that I could hardly walk and sometimes I would crawl. So it did help me then. I’m taking LDN now not sure if it’s working yet (I’ve heard on here it could take up to 6 months to work), I do get flare ups, sometimes kind of bad. But use heat ice chiropractor, biofreeze, etc. and Advil when the other things don’t work. Not very often. I’m not great - especially with all the crying, however being able to get up early is great. I will never take it again.

Jump to this post


Replies to "@tbirddonna oh boy. Now of course this was only my experience. After taking it for over..."

@jeannesf1 There is a Facebook support group for Cymbalta users, called Cymbalta Hurts Worse Support Group. Maybe some of those members could offer some advice. I read that drug is only somewhat effective for only about 30% of people with fibromyalgia, so I decided the side effects weren't worth any possible benefits, but it was the first drug my rheumatologist suggested. Luckily I found LDN which helps tremendously. Good luck to you.