← Return to Low platelets from hydroxyurea living with polycythemia vera?

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I can only hope for this! I get phlebotomies about every 8-10 weeks but getting my platelets under control relies on how much Hydroxyurea I’m taking. Every time we increase it I get bad side effects like tooth and nerve pain and extreme sensitivity to sunlight. Hair loss too. It’s definitely a balancing game. I’m 3 years in with this disease and am grateful for this site.

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Replies to "I can only hope for this! I get phlebotomies about every 8-10 weeks but getting my..."

@nypara66 thanks for sharing
My mom was doing phlebotomies every 2 mins as her hemotcrit kept going over 45. We increased the Meds slightly in sept 2025 - no phlebotomy since but now platelets dropped. So off meds for 7 days to see if platelets will increase