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@mugsarella, saw your post about your husband. Hope things are going well. My wife was recently diagnosed with AD, MCI, after the ptau test, PET scan and neurological testing all were positive for AD. She is going through the process to start Kinsula infusions. Just wondering how what you and your husbands' experience is so far with the infusions. Any info would be appreciated.

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Replies to "@mugsarella, saw your post about your husband. Hope things are going well. My wife was recently..."

@paul55
It did take a bit of time to get insurance approval. (Have not seen a bill yet, but it appears insurance will cover this.) There was also time involved in scheduling for another MRI, which was a baseline MRI very near infusion time, as well as another visit with the neurologist, so all told, it was almost 3 months’ time from initiating the request for Kisunla to actually getting to the treatment. My husband’s first Kisunla infusion was a reduced dose, and it went without incident. The nurse practioner answered our questions thoroughly beforehand. I was vigilant, watching my husband for any aftereffects, and the day went on as normal. Immediately afterwards, he did say his head felt a little different, but he was not dizzy or headachy, and the infusion center nurse evaluated it as not serious. He worked outside for awhile that afternoon, and we attended a show for which we previously had gotten tickets that evening. He became so sleepy-tired at the show that we left at intermission. I thought that his brain had really worked hard with the Kisunla because he was definitely more tired than normal. He slept very well that night and get up refreshed in the morning. It’s been three days since the infusion, and there have been no untoward reactions.
I might add that it was just over a year from the time that I first became concerned about his memory problems to the date of this first infusion. It is a relief to have the first infusion behind us, and we are hopeful that our timing was right and that the progression of MCI due to AD will be slower. It is already such an adjustment to live with MCI, and we are hoping research brings new findings if his progress is slowed down.

Hope this helps!