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Anyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: 1 minute ago | Replies (417)Comment receiving replies
Congratulations on this wonderful news!!!!
HU can upset our GI systems. As nohrt4me advises, drink LOTS of water each day. I like yogurt's soothing effects too. You always take your capsules with food, right?
Your headaches may be from the ET itself. Have you ever sprayed lidocaine on the back of your neck? That can help. For me, HU greatly reduced the severity of my headaches. Hope that will be true for you as well.
ET may also be responsible for your congestion. Our mutated platelets are so weird that they can trigger our histamine response. With permission from my oncology nurse, I take an allergy relief pill every morning. Makes all the difference!
Replies to "@hipsu5 Congratulations on this wonderful news!!!! HU can upset our GI systems. As nohrt4me advises, drink..."
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@janemc This is very interesting to me. I went to an allergist due to constant post-nasal-drip and the annoying constant throat-clearing. He said I was not allergic to anything..........great, and that I had non-allergic rhinitis. Never thought about the HU. And never had this issue till started taking it. I just reduced my dose of HU to every other day 500 mg and my hair stopped falling out, but will try to OTC allergy pill again. Thanks. I know we all are different, and have different reactions but what the heck?/