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Are there are any young onset Parkinson's patients in our group?
Parkinson's Disease | Last Active: Jun 3 2:10pm | Replies (26)Comment receiving replies
This has been quite a journey so far with having Parkinson's. I have only known about having Parkinson's for about a year now. So for over twenty years I have blamed myself for not being able to do my job. I was a CT and MRI technologist working in the hospital. I could not start IV's which was part of my job. I started to work at a slower rate and pressure was being put on me and the only way I felt was to leave my profession which I loved helping others. It made me feel like a failure because my family income was cut in half and my husband thought I just didn't want to work. I feel a relief now knowing it was the disease but I still am blaming myself. It has affected many years of my life just to say it's ok now because it's not. I am looking at getting some counseling to help me relax and focus more on sleep I do not get enough of lately. Are there any others who have to deal with these issues? They weigh heavy on my heart.
Replies to "This has been quite a journey so far with having Parkinson's. I have only known about..."
@wkrebs59 I to have early onset but it was 52 before I was diagnosed. they thought I had stokes. I was on propanol to which stopped me from hiking and other things I loved. I find it difficult to find others in my age range. And l too lost a carrier I loved. I was a self taught web developer and a good one .I built my own business from scratch until I was let go form a project that I managed. because of many issues. My partner at the time even left me because my business failed. it was my dream and I was doing well and getting well known.
But I have learned a lot about life. life is beautiful and have learned to survive. I still want to travel and have ideas. but it hard to complete things .
I am having trouble finding IN person support groups for people like us.
it's difficult. but one day at a time.
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@wkrebs59
I'm sorry to hear of the struggle you had understanding what was causing your symptoms. It had to be difficult to give up a job that you loved. I was not diagnosed for about 15 years; however, my symptoms started in my late 40s. It was a bit more difficult to diagnose, as the Parkinson's symptoms were related to an environmental exposure. I can understand the relief that you feel now that you have a diagnosis.
I see that you are seeking professional counseling. That is a good way to begin the process of releasing yourself from those thoughts of blame. It is important to move forward with treatment and physical exercise.
Have you been referred for physical therapy that is specific to Parkinson's?