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← Return to Psoriasis- Desperate!
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@rashida It wasn't working and I have since switched to Bimzelx, but that hasn't been working yet either. I think Bimzelx is causing me some additional issues with my eyes and mouth as well. I keep getting blepharitis as well as psoriasis in and around my eyes and now I have a white tongue, too. I still have to get my tongue checked out but I've already had several treatments for the blepharitis and it goes away but then comes back a while after stopping treatment. I never had this on the other biologics. Actually, while taking Humira, I never had any of these issues, but I can't take that anymore unless I want to pay full price for it. I have to bring all this up with my rheumatologist at my next visit. The last time, she mentioned if Bimzelx didn't work, I could try Tremfya, however, I am skeptical of that working either. It targets the same protein as Skyrizi, which reversed all the clearing I had with Humira, plus my knee blew up while on it.
Replies to "@rashida It wasn't working and I have since switched to Bimzelx, but that hasn't been working..."
@njbay I know the frustration of having to switch from something that worked for you to something that reverses all progress! I’ve been there!
I am so sorry Bimzelx has not been working for you. Every body reacts differently to medications so what works for one does nothing for another. Psoriasis treatment is trial and error until you hit the right one. Don’t give up - keep trying the different medications till you find the one that works for your body.
Are you being treated for psoriatic arthritis, or the psoriasis? Have you seen a dermatologist in addition to your rheumatologist?
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@njbay
Stelae’s and Skyrizi did nothing for me either, but Bimzelx has worked. It takes about two or three months before you will notice any improvement, but having said that, no medication works right away, and no two people have the same results. For me, while Bimzelx worked on my scalp I got psoriasis in my ears - something that had not happened before. My doctor prescribed Dermotic Oil ear drops and they cleared the ear psoriasis.
I can’t remember if I asked you if you have tried Methotrexate … that worked very well for me, clearing all the psoriasis. Unfortunately I couldn’t continue with it long term because I have a fatty liver and Methotrexate would affect it.