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Blood Cancers & Disorders | Last Active: 6 days ago | Replies (64)

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@anne111

Does anyone out there know of any children's hospitals that offer stem cell replacement for patients with HES when other more traditional treatments have failed?

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Replies to "Does anyone out there know of any children's hospitals that offer stem cell replacement for patients..."

Lori, Volunteer Mentor | @loribmt | 6 days ago

Hi @anne111 I’m so sorry to hear that traditional treatments haven’t been successful for your child’s Hypereosinophilic syndrome (HES). From my understanding, a stem cell transplant (SCT) may be a potential cure for HES but not everyone’s a candidate. So a consultation with a specialist will be your first step.

This website for bmtinfonet.org can be very helpful in locating a pediatric transplant hospital. You can type in the info for your particular needs.
https://bmtinfonet.org/transplantcenters
I also know that Mayo Clinic offers pediatric SCT transplants. If you’d like to request an appointment at one of the Mayo Clinic campuses, either in Rochester MN, Phoenix AZ or Jacksonville FL, here is a link to start the process. http://mayocl.in/1mtmR63

Has your child’s doctor discussed the possibility of a SCT? Did they offer any recommendations?

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