← Return to What do you do when you just want to cry?

Discussion
kartwk avatar

What do you do when you just want to cry?

Caregivers | Last Active: 5 days ago | Replies (37)

Comment receiving replies
Profile picture for stevens2005 @stevens2005

Isn't venting great. Especially with a group like this of experienced care givers who deal with brain fog loved ones 24/7. Does it hurt? Of course. We wouldn't be human if it didn't. I can only speak on what I am dealing with. My husband's brain fog seems to come and go. When he is up and functioning on all 4 cylinders, I speak calmly to him about what his reaction to some things recent have been towards me or others. His personality changes and he becomes grumpy and swearing at everything including me. I tell him about it and what he said and how I perceived his comments. I tell him what he forgot and what I forgot. We laugh at each other. He apologizes and then I get him to write down in his journal in his own words what we talked about. The next time his attitude strikes and he forgets something and blames me, I hand him his journal. I respect his privacy and never read it. That tattered paper journal has helped calm him so many times. Why? I haven't a clue, but I hear him laughing. Sometimes he shares...most times not. This may not work for your situation. Know I am nearly 8 years into cancer treatment for him and thank God my wonderful silly man is still with me.

Jump to this post


Replies to "Isn't venting great. Especially with a group like this of experienced care givers who deal with..."

@stevens2005 Thank you so much for your post! I forget (too often, I think) that it's the brain fog talking, and not the sweet guy who was there before all this started. I"m going to work on trying your approach to the grumpiness and swearing: I forget that these are all part of the brain fog, and I find myself getting angry as well. You have given me strength...thank you. Now "all" I need is a little more patience. 🙂

A 7th round of chemo was ordered by the oncologist, then later cancelled by the surgeon. We're grateful for that as these chemo sessions take so much out of him physically and mentally. Now we wait to hear from the scheduler in radiology to schedule the restaging pancreas protocol CT scan. Depending on the result, Whipple surgery is tentative scheduled for the end of next month. The worst part of all this, I think, is never knowing what actually comes next. I know that one day at a time is all we can control (and barely that) , but geez...< sigh>