← Return to Glioblastoma IDH:wildtype MGMT positive

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Glioblastoma IDH:wildtype MGMT positive

Brain Tumor | Last Active: Mar 18 7:45pm | Replies (10)

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Profile picture for Colleen Young, Connect Director @colleenyoung

@amy913, in addition to @kpickowitz's brother's experience with Optune, you may be interested in this related discussion where @otis123 graciously continues to share about her experiences caring for her husband:

- My Husband's journey with Glioblastoma https://connect.mayoclinic.org/discussion/my-husbands-journey-with-glioblastoma/

Your journey caring for your husband sounds heavy and complex. I'm glad to hear that you are in good hands at Mayo Clinic and that you are staying at the Hope Lodge. It can help to have others around.

Do you live far from Mayo? How do you feel about returning home after the 6 weeks? Do you have support at home?

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Replies to "@amy913, in addition to @kpickowitz's brother's experience with Optune, you may be interested in this related..."

@colleenyoung we are 3 1-2 hrs from Rochester in central Wisconsin.
Great question! I have been thinking about all the things at home. I am grateful for friends and family that are willing to help carry the load. I am learning to accept the help. I think the biggest challenge is that I didn’t know what to say when people asked to help. Learning.