Anybody achieve full remission within one year?
In searching, this forum, which has been very helpful in many ways, but it lacks anything positive regarding successful remission of PMR which I would define as no predinizone, and pain less than 2.
Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.
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I went into remission at about 6 months on prednisone. I had the disease about 3 months prior without a diagnosis. I suffered from fatigue for another 6 months. Some aches and pains probably related to being over 70. I went on a mission to figure out fatigue. I think my adrenals were slow to respond but my testosterone was low, my blood pressure medication was causing some issues, and stress. I have had some pain in my hips that I have written off as old age and found out I have severe osteoarthritic hips. So its tough to say no prednisone and no pain when many things can start to accumulate. I have not taken any more steroids.
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1 ReactionYou asked for it………
Here’s. Synopsis of other posts on my journey.,…you can search them out and see all the replies from many others.
My last Dr appt.
This all took place over a conversation, of praise, thank yous etc. Update….
.today saw Rehumy…..🎂 to me…. 🥂
State/plead my case….to 🛑 Kevzara
Good blood work
Pain free for ages
2 yr anniversary of PMR onset, like GREAT
11 months Kevzara
4months at 3 wk interval and no pain (why not give it a try?) off prednisone for 8 months.
Healthy active and 79yo female way ahead of the average patient of that age
No other medical issues.
Ok…..🛑 Kevzara, re test blood 2 months
Assume no issues
Re test blood 2 more months
Follow up appt after that.
So here’s my reply to a fellow bloggers ….. stop coping and start living!……Kathleen, thx for asking…..
I am a 79yo female abt to be 80, loving life and very fortunate…..I live in SW, great weather to encourage outdoor activities. Live in an 8000 acre gated community with more ways to “live life to the fullest”, and lots of “playmates”. Sun, hike, bike golf, pool, fitness Ctr , great friends, and wonderful support group are my everyday blessings, and terrific hubby of 56 yrs.
How did I get here….
When at my lowest, my support group gave me hope and promise, and the view was and is always sunny. My physical savior is my trainer whose specialty is Functional Movement. She uses her fingers and hands (not massage) to wake up the sleepy spots, TVT is the latest technique. In addition, weights, TRX, ball, everything that is my weight based. No machines. Lastly, after 3 months to diagnosis I met an orthopedic consultant (who has PMR) who sent me to Aqua PT….sure makes you feel like living. I was able to take those exercises to the club pool where I live.
BTW: my support group includes all of this fabulous group, too.
Yes, I might be numerically old, but my life far surpasses that of many people. I’m not looking for CCRC. I’m looking for the next new restaurant, bike trip, travel, game, whatever. Yes, living life to the fullest and proud of it. I am blessed and very fortunate.
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6 ReactionsYes , 3 half months treatment with Pred & 12mths of treatment with Actemera for GCA & PMR
Now 5months since cessation of Actemera (& over a yr since stopping pred ) I’m completely treatment free and remain in remission.
No pain , normal blood results.
Back to my base line good health.
Its possible.
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2 ReactionsHello, I have found this forum along with others usually are stories or questions from those that are having struggles with PMR. I have had it since 2011. After a couple years I started looking into long term PMR and found a couple forums. Over the next few years three friends told me that they had been diagnosed with PMR. I was surprised that for them it lasted less than a year.
There are a lot that it does last less than a year but those of us that are long term will often find forums like this.
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1 Reaction@tweetypie13 Too bad everyone isn't as blessed and fortunate as you. It's easy to cope when life is perfect.
@christi48
Thank you for recognizing my life……I am blessed.
From day 1, like others before me, It was ugly and miserable and far from perfect…..but….. I worked hard day and night to make it perfect in any small way I could . Days on the couch curled up in the fetal position, lost 20 pounds, couldn’t hold a fork, depression, angry, tears…….
Thru it all, my “team” worked with me to rally in any small way I could.
Yes, I am fortunate, I had and have amazing support.
When my life was full of lemons, I chose to make lemonade with the best of whatever ability I had at the time…..and still try today.