@eloise999 wow… I used to run a pharmacy before my symptoms and constant specialist appointments became too frequent that my health became my full time job. But when I was working, I was the youngest lead technician, but there was a running joke that while I wasn’t even 24, I was essentially 40. because of just how many symptoms and diagnosed conditions I had. Which then already included arthritis, nerve pain, and sciatica, among all of the others.

I also absolutely have all of the symptoms that you mentioned, and almost all of them either came about or got worse over the last 5-ish years. And, ironically, all of those same exact specialists. I also have SVT and mitral valve prolapse that was diagnosed two years before my platelets first showed out of range and I saw my first hematologist.

I also struggle with chronic muscle spasms that sometimes are so severe the muscle will get stuck, neck pain, nerve pain, joint pain in my knees and hands and my hips.

Before you started seeing the correct providers for and had a diagnosis, had you previously taken collagen peptides? For your connective tissues/Joint pain?

I know for a fact that I need a bone marrow biopsy and I definitely plan on insisting that my new oncologist do one as soon as possible. Especially if 90% of the symptoms that I’m having can be nearly eradicated with HU.