← Return to Active Surveillance vs. Treatment for NHL & Mass Against Kidneys
DiscussionActive Surveillance vs. Treatment for NHL & Mass Against Kidneys
Blood Cancers & Disorders | Last Active: Mar 30 8:45am | Replies (12)Comment receiving replies
Replies to "Hi @stonyah I have been diagnosed with Stage IV CD10-/CD5- low grade B cell lymphoma, morphologically..."
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Hi @schimmi It’s always a little scary starting a new treatment and I know you’re not crazy about having the Rituxan infusions for your B-cell lymphoma. But this drug has a proven track record for treating B-cell related issues.
I also had to receive rituximab (Rituxan) infusions weekly for a month to treat B-cell related inflammation on my spinal cord. It’s a strong anti-inflammatory drug. I had lost feeling from my waist to my toes and after receiving high doses (1000 ml) daily of IV steroids to reverse the damage, the Rituximab infusions prevented the inflammation from returning. It has worked beautifully.
My doctor explained that most patients have some reaction to the first infusion. But that the infusion specialists would be right there with me, ready to handle any side effect should it arise. I did have a reaction which came on subtly at first while I was reading a book. My throat had an odd feeling so I told the nurse. She immediatly gave me an injection (in my IV tube) of a steroid and Benadryl. Then slowed the drip rate. That was it. Crises averted and the subsequent infusions after that were uneventful. Which is typical for most people. I didn’t have any notable side effects except that my spinal cord healed and my ability to feel my legs, walking and balance all returned. For me Rituxan was a miracle drug. And I think you’ll find for many B-cell lymphoma patients this has been a beneficial treatment
There are a number of conversations in the forum with B-cell lymphoma patients. Here is a link to the search results: https://connect.mayoclinic.org/search/
Looking at your bio page I see that you’ve been a member since 2023, but this is your first time posting. So, belated Welcome to you! What brought you to Connect back then?