← Return to ET: untreated elevated platelets for over 13 years

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Profile picture for lexsjx @lexsjx

@nohrt4me ugh yeah I’ve definitely been dealing with my fair share of allergies and random allergic reactions and hypersensitivities that sent me to the ER and put me on steroid packs over and over again. In 2022 I think I was put on a steroid pack for severe allergic reactions at least 10 times, and experienced such extreme reactions in front of general doctors who recommended I go to the ER once a month, with a few months going twice. But no ENT or allergist could really point to anything specific causing the full body hives and rashes and then the systemic symptoms that came shortly after. I also have really bad acid reflux, so I have been on famotidine for these symptoms, which I know is also helpful with excess histamine. But I’ve also just recently been put on pantoprazole on top of the famotidine because of the severity of the acid reflux. So I will definitely bring this up as a talking point.

Apart from the obvious blood work, are there any other blood tests that you’ve had done or found helpful to bring up with your provider due to a potential link between those abnormal results alongside elevated platelets?
know every time I’ve gone to the emergency room for intense abdominal pain or allergic reactions they would always check my D-dimer levels, and they have never been below 600. Usually over 1000, and the last time that they tested it was over 1500. But they didn’t explain anything about it apart from “see rheumatology”

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Replies to "@nohrt4me ugh yeah I’ve definitely been dealing with my fair share of allergies and random allergic..."

@lexsjx I have a complete CBC every three months to monitor. Guessing that's what the doc will focus on.

If you had the JAK2, CALR, MPL tests for driver mutation and they were neg, the doc would want to see those. Also results of an ultrasound if spleen if you have had one of those.

If you have any other "off" blood values, good to have those.

Now that I take hydroxyurea, they do a blood chemistry panel (CO2, glucose, calcium, sodium, etc.) and test EFGR and LDH, which monitor liver/kidney health. If you have had those tests recently, the doc might be interested in those results as a baseline.