It is difficult & it changes who you are. I was an on the go person & I would push thru difficult things. I have to know now that it's a different phase of my life. I do find when I do something, my pain is less, especially when it's meaningful. I have led a group called Hopekeepers for years and, like this group, we know what we mean when we say we have pain. I do other volunteering too. But when I hit the wall (can't do anything) I rest. The first 10 years were the hardest - not that the pain was worst but I had to figure it all out. You can't help feeling like you don't want to go on some days but I think it's important to find something you can do & take baby steps.

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