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Not Good News after prostate biospy when MRI didn't look too bad
Prostate Cancer | Last Active: 1 hour ago | Replies (285)Comment receiving replies
@brianjarvis
This has been a real pain, the surgical doctor did think they should have assigned a SUV on rib (after he looked at it), and was going to ask for review and ask why no mention of mention SUVmax scores of blood/liver/parotid since they did do a SUV on prostate of 11.1. It doesn't seem like I am asking a whole lot!
KUMC Doctor is out for a week, but ask his nurse to get review done this week. Nurse talked to radiation department and got this responds: " I called and spoke with the nuclear medicine department and it is not standard practice for them to re-review your images to report the SUVs. It was reiterated to me that all pertinent information will be stated in the report".
So they refuse to look at it again! And when they say pertinent info is in report, what does that really mean, I should have access to all of it. I did read that I can submit formally request called an "Over-Read": Explicitly ask for a second interpretation (or "over-read") of your scan, particularly if you suspect a misdiagnosis. You can ask for a subspecialist radiologist to review your scans. However, it seems they ate ignoring that request.
And this is what they call--The University of Kansas Cancer Center
is the only National Cancer Institute (NCI)-designated comprehensive cancer center in Kansas and the region, placing it in the top 1% of cancer centers nationwide.
I am really down and figure they are just going to do nothing. Damn medical field!
Replies to "@brianjarvis This has been a real pain, the surgical doctor did think they should have assigned..."
@diverjer Their response “pertinent information” makes sense…from their viewpoint.
What I’ve found is that doctors (in this case urologists, radiation oncologists, & medical oncologists), will tell you everything they think you need to know for them to treat you - but not everything you’d want to know, especially if you want to know fully what’s going on, self-advocate, and share in the decision-making.
(With an SUV of 11.1, it’s kind of like knowing you have a body temperature of 98.6° F. Unless you know what a “normal” temperature range is, it’s just an arbitrary number.)
Second opinions are standard these days, especially for anything that requires a medical opinion - like interpreting tissues, scans, images, etc. or recommending treatments.
Sorry you have to deal with an uncooperative medical team.
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@diverjer
As I’ve already mentioned, I have a rib that shows up every time and has no SUV, It shows up because I broke it over 50 years ago.
I suspect her situation is pretty much the same. Maybe you don’t realize that it was broken at one time, Or maybe cracked significantly, No metastasis no SUV.