Anyone have experience with genetic testing?

Posted by mygoodgirls @mygoodgirls, Mar 16 6:58pm

I am meeting with a genetic counselor tomorrow for a consultation. Family history of prostate cancer: Dad and 2 uncles. Breast and cervical cancer: 2 first cousins. I had read that there is some genetic testing that can help predict recurrence odds to help guide treatment plan.

I am told that insurance doesn't always cover genetic testing and it can be spendy $$. Does anyone have experience with this and is it worth it? I think there may be a variety of tests...are some more important than others?

I would love to hear anyone's experience with this. 🙂

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When I was diagnosed with breast cancer, I did a full genetic test, A-Z. Your insurance will cover it. Its either saliva or blood test. Thankfully I was not positive for BRCA 1 or 2 but still got breast cancer.
Genetic test is not foolproof but worth doing it as you only need to do it once.

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Profile picture for Arvind Natarajan @malebreastcancer47

When I was diagnosed with breast cancer, I did a full genetic test, A-Z. Your insurance will cover it. Its either saliva or blood test. Thankfully I was not positive for BRCA 1 or 2 but still got breast cancer.
Genetic test is not foolproof but worth doing it as you only need to do it once.

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@malebreastcancer47
Thank you ❤️, I appreciate you sharing your experience

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I did it and insurance covered- I think that’s why you meet with a genetic counselor first to see if there is a “cause” to test and then insurance will cover. Mine was a blood test. My paternal grandmother had breast cancer at age 40.
Mine came out negative- good to know, now I know I can’t pass on the gene to my children

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I had genetic testingdone for similar questions. All the test except one came back negative. The questionable one did not have enough data to make a positive statement. Helped clear up a lot of clouds though. Good Luck!

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For me it was worth the additional peace of mind just knowing whatever I can know about any risks to me and descendants. Also, some tests can help identify helpful treatments. The counselor I had was very helpful with making my decision to move forward with testing. Good luck.

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My response to you is, after doing 23 and me. I found out I was in a high risk category for many concerns of a female nature..
I found out I was half Ashkenazi a Jewish.
I am adopted so I have no idea what any of my relatives had or did not have.
I also come from the eastern block.
I had genetic testing several years ago.
By the grace of God, all 56 markers came back negative.
Which reduced my chances of the high risk category for breast cancer, and BRAC genes and ovarian cancer, and a few others.
However, I am still considered high risk because, I have very dense breast tissue, and I’ve had several surgeries non-cancer related, and they’ve been reductions, removing scar, tissue and adhesions, cellulitis from an infection, implants put in, and then years later implants taken out and then I was put back together correctly for the first time.
I was fortunate that my insurance paid for the genetic testing that cost $250.
It’s because I was in a high risk category.
I think the genetic testing is absolutely necessary, if your gene pool is high risk.
However, my geneticist told me that even if my markers came back positive my chances were slightly greater.

All 56 of my markers came back negative, which was a miracle, she said anyone, even with markers that were negative, can still develop breast cancer. It’s not an exact science..

I hope this helps.

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Yes I did it! After I was diagnosed with BC at 55 my dr recommended it . I did the full 99 gene test and it came back negative on all. It was a relief for me as I have a daughter , sister, nieces etc. Also my insurance paid for it.

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I had 2 breast cancers and colon cancer since 2016. My mom had 2 cancers.
I had a genetic test which revealed a hereditary pathogenic gene, (now I know why I had the cancers and the 90% risk). Fortunately all small and treatable. I received a letter to share with daughter and my two siblings. The letter also contained a list of yearly tests. I am very worried about family. They are all at 50% risk of having this gene, and if they do there is a 90% cancer risk. I am very anxious to hear results of my daughter’s blood test. If she has the gene, we worry for her then our worry also extends to my 12 yr. old granddaughter who would be at 90% risk of childhood cancers. Yes, even if markers are negative one can still get cancer within the lower generalized risk. Best to you all.

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Profile picture for celestebradham @celestebradham

I did it and insurance covered- I think that’s why you meet with a genetic counselor first to see if there is a “cause” to test and then insurance will cover. Mine was a blood test. My paternal grandmother had breast cancer at age 40.
Mine came out negative- good to know, now I know I can’t pass on the gene to my children

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@celestebradham
Thank you ❤️

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Profile picture for deebee41 @deebee41

I had genetic testingdone for similar questions. All the test except one came back negative. The questionable one did not have enough data to make a positive statement. Helped clear up a lot of clouds though. Good Luck!

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@deebee41
Thank you ❤️

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