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← Return to ET: untreated elevated platelets for over 13 years
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ET: untreated elevated platelets for over 13 years
Blood Cancers & Disorders | Last Active: Mar 26 11:22am | Replies (30)Comment receiving replies
@debhammel Migraines are awful! I did not have as many as you, but they came with blinding auras that always seemed to hit when I was teaching, and trying to see the board or a kid who raised a hand was just about impossible. Like you, the HU cleared those up, thank heavens! If I eat the really good dark chocolate, that will sometimes set one off, too.
Replies to "@debhammel Migraines are awful! I did not have as many as you, but they came with..."
@nohrt4me did you take any other medications to treat the migraines before starting HU? Had any seemed to make a difference? I ask because I tried every single one of them on the market with no success and no answers as to why. I also included a ton more information in my reply to @debhammel ’s original comment. Please, feel free to share anything that resonates with your experience 🫶🏻
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@nohrt4me It is interesting that our medical practitioners are seemingly unaware of the possible link between high platelet counts and migraines. I know my PCP has a new raised awareness as a result of my experience and she is now way more sensitive to checking platelets when her patients complain of migraine.