← Return to Looking for anyone with a CNL diagnosis

Discussion
Comment receiving replies
Profile picture for juliej14 @juliej14

@loribmt Thank you for your kind words and response!
To answer your question:
I think my greatest recovery challenge is the fatigue. Not just the physical exhaustion, but probably more so the cognitive/mental fatigue-ability . I feel as if tasks that used to be simple, like answering a text or formulating a cogent email response, takes so much more time and effort, with results that are no where near my pre-cancer abilities. Then to combine that with other tasks like ADLs, finances, cooking, driving, etc. and it feels so physically exhausting, as if I had worked a 12-hr shift, then ran 5 miles, and played a game of tennis (slight exaggeration, of course), before going home to make dinner and care for my large family! The only problem is, I’ve not done any of those things, nor could I at this time. 🙂
It continues to be difficult to talk on the phone, read for pleasure, or even enjoy a new TV program, as it’s difficult to stay on task. I feel like I developed ADHD with my limited focus and stilted executive functioning skills.

Fortunately, I have had great support from my therapists! I have learned to be kind to myself, especially giving myself grace, often. I understand that I’m now living a “new normal”. I can’t say I’m “joyful” (yet), but I am grateful for so many things.
Thank you for asking.

Jump to this post


Replies to "@loribmt Thank you for your kind words and response! To answer your question: I think my..."

@juliej14 - Thank you for your private message and kind words about my recent CNS lymphoma relapse. My congratulations on your continued remission as it seems you are getting closer to a durable remission. In your comments here to @loribmt, it sounds like you’re dealing with brain fog after treatments. I can relate to that with many of the same symptoms you describe. I felt for a long time that the brain fog was because of the CNS cancer but realized later that this is not limited to CNS cancer but affects patients who receive chemotherapy for many different cancers.

Below is an article posted on Connect from Mayo Education on brain fog which I found encouraging. It helped me to realize I wasn’t alone in this result of my cancer treatments. Hopefully it will help you realize the same and perhaps provide encouragement. I know for me, continuing to read, work puzzles, and daily walking or other exercise is the best I can do to keep my brain active.
https://connect.mayoclinic.org/discussion/what-is-brain-fog-like-how-can-i-better-understand-as-a-caregiver/
Sending my best wishes to you for continuing remission and success in moving forward with a new perspective. Take care and be kind to yourself. Hopefully you will continue to find additional support and inspiration from this great community.