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DiscussionHas anyone heard of Dandelion Root being helpful on AML/MDS
Blood Cancers & Disorders | Last Active: Mar 19 10:37am | Replies (7)Comment receiving replies
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@loribmt
Lori,
Thanks for your interest. Quick history. She was diagnosed with MDS in May 2023. Cleveland Clinic re-diagnosed her with AML in December 23. June 23 biopsy showed 14% blasts. No treatments for that period…just monitoring. In Feb 2024 started treatments with Dr Badar, Mayo JAX. He drives the train, but treatments administered by our local oncologist in Georgia, with monthly video conferences with Badar or his team members.
Started with the 7 day per 28 protocol. OK for 3 or 4 cycles then reduced numbers resulted in going to five days of chemo injections. Waited between cycles for numbers to recover, one time the wait was for 90 days. Then put on Inquovi (pill) plus VEN, but now, Badar is recommending going to a weekly injection of Decitadine and VEN. She has had 8 biopsy’s and all except the first one have shown no evidence of leukemia. We are currently waiting for the results of number 9. She has also had a number of platelet and red blood transfusions.
It seems our issue is her ability to tolerate the drugs. This May, she will reach three years. Symptoms primarily fatigue, poor appetite, bruising, etc.
Interested in what your experience tells you about this case. She had no treatments from May 23, when diagnosed with MDS, to Feb 24, and none for a 90 day period mid last year, and so far, still showing remission. Considering the aggressiveness of AML, what are your thoughts?
She is now 81. Oh, on the dandelion root question. If she drinks tea, why not dandelion root tea?
Thanks, Jim