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Profile picture for dmshope @dmshope

Eventiy can follow PTH meds - and there are studies to support this.
I took tymlos 22 months/ actonel six weeks/ and am now on evenity
My history is that I was fracturing ( non traumtic) both feet and discovered sever osteo and was put on tymlos.
There were a tremendous amount of tests done to clear up imbalances and eliminate disease possibilities including genetic work ups. PTH meds ( forteo more so but also tymlos) are known to reduce cortical strenght/quality in some people. Feet are primarily cortical bone ( as are forearm and hips also have a moderate amount of cortical . I stayed on tymlos 20 months but felt deterioation in the feet about month 18 but I didnt relaize it was the medicine. As tymlos was finished, I was put on Actonel temporairly until we figured out what to do for the feet. It was a bit of a battle. Evenity has a better response in cortical bone so that was the decision. I am now in my 11th month and the feet are improved. I will see dexa results in the next week.
Be a strogn advocate for yourself. This is a complex disease and every one has different circumstances Sending postive energy for your path to healing.

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Replies to "Eventiy can follow PTH meds - and there are studies to support this. I took tymlos..."

@dmshope

Great info. Thanks

@dmshope, I had read that microscopy indicates the increase in porosity in cortical bone with use of the pth drugs doesn't result in a loss of strength, but an increase in elasticity or bounce giving the bone a better opportunity to survive impact without fracturing. It seems to me that nowhere would that be more important than in the feet.
Experience is a better measure (for me) than abstract speculation. Anything more you can reveal about the deterioration in those feet of yours would be interesting for me. Were they imaged and/or aching. Was the discomfort after exercise or after sleep. Thanks, for this post, even if there aren't more answers answers.