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Medtronic Spinal Cord Stimulator for a 36 yo w/low back pain/epilepsy

Posted by noelia88 @noelia88, Aug 21, 2024

Hello, I am 36 years old and I have epilepsy for the past 11 years (it started with my pregnancy and they never stopped). Since then I have had low back pain that gets worse after every episode, It never gets better, sometimes the injections helped but not anymore, physical therapy, acupuncture, massages didn't work ether. My back MRIs and X-rays are unremarkable but I still have this pain that doesn't let me have a normal life and puts me down to bed. Now, my pain management doctor is recommending SCS by medtronics and I would like to hear from others that have done SCS or that are in the process. Thank you.

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Profile picture for gotit123
gotit123 | @gotit123 | Mar 15 12:40pm
In reply to @heisenberg34 "@gotit123 I had the Medtronic SCS implanted about eight years ago. It worked really well along..." + (show)
Profile picture for heisenberg34 @heisenberg34

@gotit123 I had the Medtronic SCS implanted about eight years ago. It worked really well along with my meds. I could do almost everything that I could do before my accident. It stopped working suddenly in 2021. All my pain came back. Looking back, I think I overdid it quite a bit which may have led to its demise. So, to those of you with a functional SCS, DO NOT OVERDUE IT. Just because you feel good doesn't mean that the pain is gone. The electrical signals only mask the pain. Don't take a chance like I did. It's not worth it in the long run.

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@heisenberg3 are you going to have yours fixed or redone4

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gotit123 | @gotit123 | Mar 15 12:41pm
In reply to @gotit123 "@heisenberg3 are you going to have yours fixed or redone4" + (show)
Profile picture for gotit123 @gotit123

@heisenberg3 are you going to have yours fixed or redone4

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@gotit123 and have they checked to make sure your battery is still charging,, they told me after a 8 to 10 years the part that you charge will need to be replaced.

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heisenberg34 | @heisenberg34 | Mar 15 3:02pm
In reply to @cynthi13 "Hello. I am 73 years old and am having severe sciatica. I have scoliosis, with a..." + (show)
Profile picture for cynthi13 @cynthi13

Hello. I am 73 years old and am having severe sciatica. I have scoliosis, with a 48 degree curvature. I have had the temporary SCS implanted and when it was removed, I realized it had given me about 50% pain relief. After removal, I am experiencing severe sciatica, which has affected my ability to walk, without the use of a cane. I am going to have the SCS permanently implanted and would like to hear from if any of you have had this implant and if so, was it successful. Thanks

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I had the Medtronic’s SCS removed two years ago. Gave up the ghost. Tried a different one but they couldn’t get the lead in the “sweet spot”. Perhaps for the best.

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rbrown73 | @rbrown73 | 6 days ago
In reply to @heisenberg34 "That’s great! I am waiting to get a trial of Boston Scientific Alpha WaveRider. I have..." + (show)
Profile picture for heisenberg34 @heisenberg34

That’s great! I am waiting to get a trial of Boston Scientific Alpha WaveRider. I have tried just about everything, including a pain pump. That has never given me any pain relief.

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@heisenberg34
I tried the Boston Scientific stimulator and did not get any relief from using it. I am preparing to try the Medtronic, which my doctor said was better. We’ll see.

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heisenberg34 | @heisenberg34 | 6 days ago
In reply to @rbrown73 "@heisenberg34 I tried the Boston Scientific stimulator and did not get any relief from using it...." + (show)
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@heisenberg34
I tried the Boston Scientific stimulator and did not get any relief from using it. I am preparing to try the Medtronic, which my doctor said was better. We’ll see.

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@rbrown73 Sorry the Boston Scientific didn’t work. My Medtronic SCS. Worked well for me. Then it just stopped. They thought some of the electrodes on the paddle lead had burned out. Personally, I think I just overdid it. Too much physical activity. Good luck with yours. Are you doing the trial?

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