@aithnie Perhaps Mayo will put a new spin on a treatment plan for you. I do not know much about this particular disorder, however, vestibular therapy and physical therapy seem to help. I've had a lot of symptoms of balance and right sided weakness, the final diagnosis was Parkinson's however the vestibular therapy and then physical therapy all made a difference as well as keeping active and exercising on a regular basis (probably a good idea for everyone). Best wishes! Teresa