You are quite welcome Teresa and yes there were other symptoms and I don't mind sharing if it helps others. First of all, I lost my Dad in 2004/5 due to Alzheimer's Disease, which caused my depression and put a fear into me. I have had physical problems for a decade or more. The first one that appeared was loss of feeling in left leg (they thought it was due to spinal block. That a nerve was nicked). I eventually got some feeling back but it was like my brain forgot who to walk. As a teen I excelled in sports, favorite piece of equipment in gym was the balance bean; but, 10 yrs ago I couldn't walk a straight line kept tripping over nothing. Misplacing items because I was putting them back in the wrong place e.g. ice cream in refrigerator. Then I couldn't play Bridge or any other card game. I thought Wow I'm going to get Alzheimer's. My psychologist (for depression) referred me to another doctor for a 3 days of testing. I maxed the mental and hand-eye coordination; physically was diagnosed with low levels of sodium. Then the MRI, radiologist reported CPM and both he and the psychiatrist told me to get to my family doctor and a neurologist. My original psychologist said what do you expect, "you are a recoveringt alcoholic (16 yrs). You damaged your brain." Needless to say I stopped seeing him. Family doctor treated me for low sodium condition.
Between 2009 and 2016 physically/mentally got worse. I started choking on food and liquids sometimes to the point of vomiting. Had to quit bowling as left arm as well as leg got worse; also, my husband noticed I would stop breathing for seconds at a time and said Gail breathe. My guts were a mess and then the horrific bowel incontinence. Falls caused broken bones. Started having troubles going down and up stairs. I was treated diagnosed with syncope although I assured the doctors I don't remember any type of fainting. Went to cardiologist for arrhythmia and low blood pressure....he mapped my heart and performed cardiac ablation. They're thought was low blood pressure and ventricular arrythmia hitting simultaneously caused the falls or collapsing to the left.. Next I told my husband that we had to switch kitchen chairs to my right side peripheral vision couldn't see trees waving in the wind or cars going down the street because it was making me dizzy which led to my collapse to the left while sitting. Wait staff and Bruce noticed my eyes went wonkers fluttering horizontally off to ER then another brain MRI which noted original CPM and now EPM. I'm hoping all remains at least steady with no further medical deterioration so that Mayo can help me.

@aithnie Thank you for sharing your story. I'm sure that these symptoms must be frightening for you and that fact that you have not found any good treatment plan must be discouraging. I can understand why you are looking forward to your appointment at Mayo in August. One thought, however, has anyone ever recommended any physical/occupational/vestibular therapy? With all of these physical problems it seems as if you might be helped. As you do, I also hope that all remains steady for you until your August appointment. Best wishes and keep in touch with Mayo Connect as you are able. Teresa

Hi Teresa, no therapy at all for my conditions. Only had pt 10 months after my lumbar laminectomy with mech fusion - I guessed better late than never. As I mentioned in a previous post the doctors here in sw ND are behind the times or only allowed 15 minute consults.