Connect
← Return to Severe chronic pain and Intrathecal pain pump
Discussion
Severe chronic pain and Intrathecal pain pump
Chronic Pain | Last Active: Mar 24 9:25am | Replies (60)Comment receiving replies
@laurenseavertson789 I understand wasted years searching for a cure and the constipation from opiates. I went thru those 15 back surgeries looking for a cure and was on large doses of opiates for years, so I get what you are saying. I never found Oxycontin helpful (I thought they took it off the market). I was on 40mg 2X/day plus a large amount of Dilaudid on top of that. The Dilaudid by itself gave me just as much relief.
It would be really helpful to know whether they fused your SI joint. The SI joint is where the Sacrum connects to the pelvis, so even though your sacrum is fused, your SI joint may not be. Do you have your radiology reports from a post last fusion MRI or CT? Those will mention fused areas if in the view field of that imaging.
No insurance, that is horrible. What about Medicare/Medicaid? I have found that Medicare covers much of my medical needs.
Replies to "@laurenseavertson789 I understand wasted years searching for a cure and the constipation from opiates. I went..."
Connect
@jcoleary I love Dilaudid, but it's only IV, isn't it? I am on 10 mg of Oxy Qid ( 40 mg a day) But it does litlle for me too. I think the opioid crisis has changed everything (on what they will allow) I was told that i am on the max of OXY, now & nothing else. The docs here are running scared & don't care if you're still in pain. I've found this out the hard way. My trial for the pump, has helped my spine, a little. But it does nothing for my groin, leg, pain, arm pain, shoulder & neck pain. I know i have a torn rotator cuff & bone on bone arthritis on my right shoulder. I am reluctant to get this, in case it doesn't go well. Pus if i were to have this surgery, it involves an extensive & very painful rehab. Plus, i would still be dealing with all the aforementioned areas of pain. I do have Medicare & Medicaid. But still these limitations on pain meds (dosage) have wasted so many years on severe, incapacitating pain. It's pretty much all been a waste. The extensive fusion helped, but this caused a severe case of Arachnoiditis & there is very little things for this. I wish doctors had more knowledge about this...many don't seem too. I don't think i want the permanent spinal cord implant. it causes intractable constipation.