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Severe chronic pain and Intrathecal pain pump

Chronic Pain | Last Active: Mar 24 9:25am | Replies (60)

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Profile picture for laurenseavertson789 @laurenseavertson789

@jcoleary I am fused C3 thru my sacrum. Think it was done thru my sacrum, due to severe pain in SI joint. I have had so many treatments etc I can't afford anything, not covered by insurance, anymore. Guess there are a few advantages to all the hardware i have? At this point, i am trying to live with limitations that i have. I had the trial, for my pain pump. While it's helping my spine, it's doing nothing for my severe leg, pain, arm & shoulder pain etc.I tried going off my oral pain pills, and i couldn't get out of bed this am. I am in agony, everywhere else. I am having to resume my oral OXY & i don't really see any benefit to the trial. I am now in much more pain. I have more pain than before. I can take my oral meds, & get the pump, but i can't deal with the horrific constipation, that comes with all these narcotics. I feel better with just the oxycontin. Guess we have to pick our poison. No pain doc, is offering me anything more at this point. I was afraid this might happen I need to be able to move a little. I can always try another doctor, but they don't seem to have much to offer me & frankly. i've wasted way to many years, in pursuit of a cure etc

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Replies to "@jcoleary I am fused C3 thru my sacrum. Think it was done thru my sacrum, due..."

@laurenseavertson789 I understand wasted years searching for a cure and the constipation from opiates. I went thru those 15 back surgeries looking for a cure and was on large doses of opiates for years, so I get what you are saying. I never found Oxycontin helpful (I thought they took it off the market). I was on 40mg 2X/day plus a large amount of Dilaudid on top of that. The Dilaudid by itself gave me just as much relief.

It would be really helpful to know whether they fused your SI joint. The SI joint is where the Sacrum connects to the pelvis, so even though your sacrum is fused, your SI joint may not be. Do you have your radiology reports from a post last fusion MRI or CT? Those will mention fused areas if in the view field of that imaging.

No insurance, that is horrible. What about Medicare/Medicaid? I have found that Medicare covers much of my medical needs.