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@loribmt I w as taking Temozolomide (Temodar) for 3 months for NeuroEndocrine cancer and my CLL (white count) went down from 35-45 (where it had been stable for 10 years) to 8. It has slowly begun going back up since stopping the oral chemo med.

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Replies to "@loribmt I w as taking Temozolomide (Temodar) for 3 months for NeuroEndocrine cancer and my CLL..."

@nana120 You’re certainly going through a great deal of medical trials right now. That’s exhausting, isn’t it? It’s not uncommon for blood counts to decrease while undergoing chemo. At least in my experience, the rebound each month was slower than the round before. Now that you’re off the Temozolomide that may give your bone marrow a chance to recover its production level of healthy blood cells. Is this just a temporary break in treatment for you or have you completed your cycles?

@nana120
Thanks for response. I am not taking any meds for CLL. It has just gone down all by it self