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Can Chronic Lymphocytic Leukemia (CLL) be cured?
Blood Cancers & Disorders | Last Active: Mar 14 1:58pm | Replies (6)Comment receiving replies
Hi @jameshadyn Welcome to Connect. You’ve certainly had some good news with seeing a reversal in your CLL labs. There have been cases cited of CLL reversing direction! You may be one of these lucky ducks!
One of our members, @gardeningjunkie shared her story here:
CLL, Spontaneous Regression
https://connect.mayoclinic.org/discussion/cll-spontaneous-regression/
I’m sure your hematologist oncologist is as thrilled to see this as you are. What have you and your doctor discussed about this possibility of reversal? Were you taking any type of medication for the CLL?
Replies to "Hi @jameshadyn Welcome to Connect. You’ve certainly had some good news with seeing a reversal in..."
@loribmt
Thank you for response. My Doctor is skeptical at this stage as told me a cure is not possible. I think 3 results over 18 months in a downward trend is enough. I will have another test in 6 months which hopefully proves it to her.
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@loribmt I w as taking Temozolomide (Temodar) for 3 months for NeuroEndocrine cancer and my CLL (white count) went down from 35-45 (where it had been stable for 10 years) to 8. It has slowly begun going back up since stopping the oral chemo med.