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DiscussionNewly Diagnosed Essential Thrombocytosis
Blood Cancers & Disorders | Last Active: Mar 25 12:02pm | Replies (7)Comment receiving replies
Replies to "@dewz13 I’m still trying to wrap my head around it all. I’ve probably had it for..."
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@sdcgcarroll
I hope your feelings are normal because that is EXACTLY how I have been…terrified then “it’s ok”
You will probably be put on Hydrea as that is what I have seen here and that is what I am on. Seems like most people get blood work every 2 weeks to monitor (I was surprised by this). I have my first follow up appointment next week and have lots of questions but my platelets have already come down some so I am feeling encouraged. Not sure if it is from the iron pills (very low Ferritin) or the Hydrea.
I’m sorry your previous oncologist was so unhelpful. But I think you are on a path to manage your “disorder” now.