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Husband with POEMS Syndrome

Caregivers | Last Active: Jan 17 9:06pm | Replies (24)
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@sandy70yikes

My husband has poems. It was diagnosed 3 years ago at Mayo Rochester. He seems to have plateaued in his recovery.

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Replies to "My husband has poems. It was diagnosed 3 years ago at Mayo Rochester. He seems to..."
Colleen Young, Connect Director | @colleenyoung | Nov 10, 2020

Hi @sandy70yikes, I'd like to add my welcome and to tag a few other members into this discussion who have experience with POEMS syndrome like @gratefulone @craigkopcho @bburleson1 and @casseth02

Sandy, can you describe more what you mean that your husband's recovery has plateaued? He was making progress and now it's at a standstill, but not getting worse?

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selmon30 | @selmon30 | Dec 6, 2022

Is he on any treatment medicines? Mom was given Revlimid (spelling may be wrong). She has now developed a severe full body rash/hives/whelps, but started the meds a month ago with no problem

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