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Husband with POEMS Syndrome

Caregivers | Last Active: Jan 17 9:06pm | Replies (24)

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@amandaa

Hi @sandy70yikes, Welcome to Mayo Clinic Connect. You will see that I moved your discussion to a conversation about POEMS so you can connect with other people with this diagnoses. Are you a caregiver or someone with POEMS?

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Replies to "Hi @sandy70yikes, Welcome to Mayo Clinic Connect. You will see that I moved your discussion to..."

My husband has poems. It was diagnosed 3 years ago at Mayo Rochester. He seems to have plateaued in his recovery.

Mother started getting ill 2018 and was diagnosed with everthing but poem. the treatment she was given was ivig, that was not helping, so we visited the Mayo clinic May 2021, and there was diagnosed with Poems. It has been an awful journey for her because the body has broken down so much, on top of that she fell and had a brain injury right before she was prepared to start her treatment plan in June 2021. /right now, she is in the hospital with a rash that has covered the entire body, except the face. Has anyone seen this if taking the Ravlimid