Anyone have mucinous adenocarcinoma of the tongue?

Sandy, thank you for your reply. My Mucinous Endenocarcinoma was also caught early, discovered when I had a hemotoma of the tongue and a biopsy confirmed its presence. Otherwise, no signs that it was present. I am into, as of today, my 20th out of 30 sessions of radiation therapy. I understand that the remaining radiation may get rough and painful, and was given morphine to ease the anticipated pain. As we know--this is a very rare form of cancer of the tongue, estimated be be only 1% of tongue cancers, and out of all cancers--tongue cancer represents only 1% or 2% of the cancers. I am interested in your post radiation therapy period. PET scans? Other? Regain control of any 'collateral damage' from radiation. Was your radiation of the tongue only, or T & N.

@jaybb1 Welcome to the Head and Neck cancer group on Mayo Connect. We are not the type of club which people generally wish to join. But here we are. Personally I have zero experience in Mucinous Endenocarcinoma although I am a bit familiar with what radiation can do to the tongue and the burning pain which results.
Hopefully (likely) others will hop in here now that you have begun a discussion concerning this rare condition.
Welcome and good healing.

thank you for the welcome. I also had ZERO experience with Mucinous Endenocarcinoma UNTIL i was disgnosed with it in November 2025. I knew NOTHING about radiation, or radiation to the tongue. But today, that has all changed based on self education and research. Looking for quality and quantity feedback. Again, thank you

@jaybb1