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DiscussionAnyone had experience with modafinil for parkinson’s fatigue?
Parkinson's Disease | Last Active: Mar 15 11:00pm | Replies (13)Comment receiving replies
Replies to "@southwest I have the same issue and for sure the correct word is fatigue. Nothing seems..."
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@sdcz
Studies and some patient experience, from what I am reading, say that some procedures help reduce fatigue although they are mainly for other symptoms. That was the idea when my doc wanted to have me try onapgo infusion, but insurance turned it down. Specific required symptoms not met. Doc says there is evidence that DBS can reduce fatigue. But I'm probably not shaky enough, not slow and tipsy enough, to get over the insurance hurdle for that.
I find it silly when providers give me handouts on fatigue, with irrelevant suggestions like "take restorative naps," when I have told them that does not work. That is in fact the problem.
I sometimes think the provider does not for whatever reason want to say "I don't know what to do, you are stuck with it" so they give you some trivial handouts and we are supposed to smile and politely walk away, to the front desk where we make our next appointment. spinning wheels.