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Profile picture for Wendy (wkrebs59) @wkrebs59

In reply to @bmfoster "The low BP issues are a real limiting factor for me too."
I went to my Primary Doctor yesterday and will follow up with my cardiologist when they get back with me. I am having bloodwork next week after a medicare physical I have to wait until after Friday which is when I go for a physical. My cardiologist has me on 10 mg 2x a day of Midodrine and 60 mg of Propranolol 2x because my heart rate increase over 200 at times. Passing out is a new thing for me. I feel I have been under stress since finding out I have Parkinson's along with the tremors and my husband has a travel job taking him away 4 months at a time. I know he is trying to get a job back here in Arizona but it's been difficult without him here. I have my son who has been a caregiver whenever I need him since he lives here with me but I worry he needs to start his own life but has been my angel. He also has a job so hopefully my husband will get a job soon. He does MRI with a mobile company and has applied to some of the hospitals in the Phoenix area and praying for a job soon so I will worry less about it. I have been increasing my fluids ( water ) and trying to sleep more but sleeping has been a big problem also for me.

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Replies to "In reply to @bmfoster "The low BP issues are a real limiting factor for me too."..."

@wkrebs59
yes it is stressful to be newly diagnosed, so it’s good you are aware of your stress and how it affects your feelings!
sounds like you are learning to cope; best wishes to you!

@wkrebs59
I'm sorry to hear you are struggling, but not surprised. These neurodegenerstive diseases require attention and learning to accept the reality of the situation. I work a 12 step program to help with the acceptance and get sound medical advice for the rest. However, you must be your own advocate too. Read and learn as much as you can and be an active part of your care team. Sending a hug your way.