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DiscussionAnyone had experience with modafinil for parkinson’s fatigue?
Parkinson's Disease | Last Active: Mar 15 11:00pm | Replies (13)Comment receiving replies
Replies to "In reply to @bmfoster "The low BP issues are a real limiting factor for me too."..."
@wkrebs59
I'm sorry to hear you are struggling, but not surprised. These neurodegenerstive diseases require attention and learning to accept the reality of the situation. I work a 12 step program to help with the acceptance and get sound medical advice for the rest. However, you must be your own advocate too. Read and learn as much as you can and be an active part of your care team. Sending a hug your way.
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@wkrebs59
yes it is stressful to be newly diagnosed, so it’s good you are aware of your stress and how it affects your feelings!
sounds like you are learning to cope; best wishes to you!