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Anyone had experience with modafinil for parkinson’s fatigue?
Parkinson's Disease | Last Active: Mar 15 11:00pm | Replies (13)Comment receiving replies
@wkrebs59
The low BP issues (orthostatic hypotension) are a real limiting factor for me too. It is related to autonomic nervous system failure - a problem associated with many PD cases. I've never actually passed out, but come very close. Heat and humidity and a little dehydration bring it on. When I feel the familiar sensation of lightheadedness start - I sit down or bend over with my head towards my knees and the feeling subsides. The frequency of these episodes is lessened by the Midodrine my cardiologist and neurologist recommended. I take it 2 to 3 times daily and try to be very mindful with my fluid intake. I try to avoid any exertion in the heat and humidity of my home state of SC - exertion in the heat is a surefire trigger.
Replies to "@wkrebs59 The low BP issues (orthostatic hypotension) are a real limiting factor for me too. It..."
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In reply to @bmfoster "The low BP issues are a real limiting factor for me too."
I went to my Primary Doctor yesterday and will follow up with my cardiologist when they get back with me. I am having bloodwork next week after a medicare physical I have to wait until after Friday which is when I go for a physical. My cardiologist has me on 10 mg 2x a day of Midodrine and 60 mg of Propranolol 2x because my heart rate increase over 200 at times. Passing out is a new thing for me. I feel I have been under stress since finding out I have Parkinson's along with the tremors and my husband has a travel job taking him away 4 months at a time. I know he is trying to get a job back here in Arizona but it's been difficult without him here. I have my son who has been a caregiver whenever I need him since he lives here with me but I worry he needs to start his own life but has been my angel. He also has a job so hopefully my husband will get a job soon. He does MRI with a mobile company and has applied to some of the hospitals in the Phoenix area and praying for a job soon so I will worry less about it. I have been increasing my fluids ( water ) and trying to sleep more but sleeping has been a big problem also for me.