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Anyone have Cutaneous T Cell Lymphoma?

Blood Cancers & Disorders | Last Active: Apr 10 8:08am | Replies (204)

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Profile picture for Lori, Volunteer Mentor @loribmt

@mrb2491 Oh gosh, that itching is so horrible and truly, I’m sorry you’re not finding much relief. My ‘scratchy’ issues are in the past and not due to CTCL. I had AML, an aggressive for of leukemia for which I had a bone marrow transplant (stem cell transplant using a donor). The itching was associated with the leukemia and not uncommon.
From what I’m reading, in certain cases a stem cell transplant can be helpful for patients with CTCL. Though it doesn’t come without its own risks but possibly worth inquiring?
https://www.mayoclinic.org/diseases-conditions/cutaneous-t-cell-lymphoma/symptoms-causes/syc-20351056
I’ve also heard of people trying acupuncture for itching with good results. Others have had success with Pepcid which is more commonly used for heartburn-type issues. I’m not at my computer so I don’t have access to easy searching right now. Another idea that may be helpful is to type in various key words in the search bar at the top of this web page. Itching relief, chronic itching, etc.

Have you tried acupunture?

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Replies to "@mrb2491 Oh gosh, that itching is so horrible and truly, I’m sorry you’re not finding much..."

@loribmt I’m happy to hear you had a good result with your bone marrow transplant.

Thank you for your suggestions for the itch. I hadn’t heard about Pepcid. I have tried acupuncture without much relief. I’m willing to try anything if it brings relief. I will do some google searching and see what I come up with.

Have a great day, Lori!