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Anyone have Cutaneous T Cell Lymphoma?
Blood Cancers & Disorders | Last Active: Apr 10 8:08am | Replies (204)Comment receiving replies
Hi @mrb2491 While you’re waiting for a reply from @cindylb I just wanted to welcome you to Connect. I’m so sorry you’re having such a miserable experience with CTCL (cutaneous T-cell lymphoma). I don’t know much about the condition but can sure empathize with the intense itching. I had similar years ago due to another type of hematological issue and it was just awful. The itching was worse than pain, I’m so sorry you’re having to deal with that!
Does anything help relieve the itching such as antihistamines or baking soda bath?
You mentioned dermatologists at Mayo. Have you been seen at one of the campuses?
Replies to "Hi @mrb2491 While you’re waiting for a reply from @cindylb I just wanted to welcome you..."
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@loribmt Hi Lori, thank you for your message. I am sorry to hear about your hematology issues as well. Itching is agonizing, and I sympathize with you. I’ve honestly tried everything under the sun. I do get temporary relief from things, but it is short lived. I have been seeing dermatologists at Mayo Clinic Rochester throughout my condition. Thank you again for your kind words, and I wish you well with your condition as well.