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Replies to "@ryman I have had several inner ear tests for dizziness/balance problems. There are a variety of..."
My son is 20, he has been having dizziness and balance problems for two years , he did some balance therapy and that improved , but dizziness is still there...we went to UCLA....neurologists (4 of them) cannot explain his symptoms...we are at our wits end....don't know what to do anymore...mri and MRA are negative, VNG negative, hearing test...everything negative....any ideas????
Hello @dianaglines
I'm sorry to hear that your son has not found any answers to his dizziness/balance problems. It does sound like he has been through a lot of the tests that deal with these types of issues. Are his symptoms daily?
Teresa
Yes, he has daily dizziness
Yes, dizziness is daily
My son had sudden-onset, severe vertigo at about that same age. He woke up one day and was nauseated with the room "spinning" every time he moved. By the end of the day, he looked like death warmed over because he was so dehydrated. We had to carry him out of his apartment into the car for a very unpleasant car ride. Either that evening or the next day, we took him to an ER. They gave him IV fluids and medication for nausea. We got him an appointment at the University of Minnesota with a physical therapist, but it took a few days to get in. Until then, he spent a few days on our couch with his head tilted to one side - the only position that didn't make the room spin. He had to have help walking to the bathroom because he couldn't walk straight. I think he had 2-3 p.t. appointments, and it really helped. He had some tests later to check for a cause, including tilt-table, eye stuff and a brain scan, but they didn't find anything. There was discussion about "crystals" in the ear that can get displaced and need repositioning. They physical therapist was very patient and understanding. This all happened around finals time, but the providers at the U of M and professors were very understanding. I have positional dizziness due at least in part to low blood pressure, which perhaps is hereditary. My brothers have it too - stand up too quickly and get dizzy. Doctors have told me two things - change positions slowly and stay hydrated. This probably isn't very helpful. You're not alone. It's frustrating.
Hi Melissa @abramsm, Thank you for your thoughtful reply. I would like to send a warm welcome to you and also send thanks to you for posting to Mayo Clinic Connect. It's so helpful to know were not alone when the struggle is real.
@dianaglines, has your son had any kind of re-positioning done?
If you're interested, here is an article that I was able to find on the inner ear crystals. http://mayocl.in/2voHUw0
@abramsm, how is your son now?
Thanks. The p.t. he had a the U of MN involved some repositioning. He's fine now. We have what I informally refer to as familial positional dizziness due to low BP, but you learn to live with that. The episode of bad vertigo he had was so sudden and so horrible that you really couldn't live with that!
Thank you. I will check out the i am always anxious about tests.