Hello @scottmcf1431, I also have metastatic SCC. Beginning 18 mos after my initial surgery I have had 2 to my lung, one to a muscle sheath, and the last to a kidney and surrounding lymph nodes. While the lung wasn't surprising to the medical team, the kidney certainly was as it is an uncommon location for a met. While the original 3 were all removed surgically, the last was treated with Libtayo, an immunotherapy that works like Keytruda on the same pathway but proven to be more effective against skin vs mucous membrane sourced SCC. Mine began in my ear canal, not oral. In a year on Libtayo my new met was gone and I was on it for another year plus then stopped due to the appetite suppression side effect. I just had scans and still clear after 3 years off the drug. That is very encouraging to me. Years ago I had read that Metastatic SCC was not curable, and my Mayo oncology fellow at the time agreed. Perhaps with these new immunotherapies that will change and cure may be possible?
By staying on top of your condition with frequent scans and rechecks you are giving your medical team the opportunity to treat issues early and successfully. It is 14 years this spring for me, and I hope you are successful in maintaining control of your cancer for many more years than that. With new treatments being approved we continue to find success in living with cancer.