Hi Cindylb, I was diagnosed with cutaneous T-cell lymphoma in 2017. I had a hysterectomy and woke up with extreme itching on my back. Over the next 18 months I developed an extremely itchy rash over most of my body. I saw more than a dozen doctors in dermatology and had many biopsies before they finally figured it out. The treatment has been quite frustrating, lots of steroid creams and UVB light therapy. I get a lot of skin infections from all of the itching. My skin itches and burns pretty much all of the time. My rash has progressed to plaques which are very itchy and painful. There are only a couple dermatologists that treat CTCL at Mayo. It’s very rare, and it doesn’t seem like there is much known about the disease or how to treat the symptoms. I’d love to connect with others that have CTCL to hear what they use for relief of the itching and pain. I’ve met one other person with CTCL, but she has just one isolated spot on her back. My entire body is affected aside from my face and hands.