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HCM-ers: Introduce yourself or just say hi
Hypertrophic Cardiomyopathy (HCM) | Last Active: 1 day ago | Replies (1163)Comment receiving replies
@walkinggirl
1 in every 250 is astounding! It is so critical for relatives to have echocardiograms plus their odds of having HCM/HOCM is 50-50. So many patients are miss diagnosed and there is no excuse. Testing is non intrusive and critical. I was miss diagnosed for 16 years and my breathing continued to worsen. I even had Pulmonologist and Cartiologist who miss diagnosed me. I was told that I was an asthmatic.
Jim
Replies to "@walkinggirl 1 in every 250 is astounding! It is so critical for relatives to have echocardiograms..."
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@jachrist I was fortunate that my family doctor noticed a new heart murmur which did not go away in 2 years. I was referred to a cardiology group and assigned to a doctor who trained at a place that is now a COE for HCM. After the tests I knew I had HCM, never heard of it!