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HCM-ers: Introduce yourself or just say hi
Hypertrophic Cardiomyopathy (HCM) | Last Active: 1 day ago | Replies (1163)Comment receiving replies
@jachrist Jim, I recently read that the incidence of HCM is one in every 250! Imagine! Better diagnosis techniques? More awareness and testing? Other than the fact that my gene is as yet undiscovered and my son and grandson get echoes, no one else in my extended family (children and grandchildren and - yikes - great grandchildren of my dad's siblings), seem to have HCM. Yes, all have been informed.
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@walkinggirl
1 in every 250 is astounding! It is so critical for relatives to have echocardiograms plus their odds of having HCM/HOCM is 50-50. So many patients are miss diagnosed and there is no excuse. Testing is non intrusive and critical. I was miss diagnosed for 16 years and my breathing continued to worsen. I even had Pulmonologist and Cartiologist who miss diagnosed me. I was told that I was an asthmatic.
Jim