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Post surgery for typical carcinoid: Very tired and low energy

Posted by jessie1990 @jessie1990, Feb 26 2:33am

Hi everyone I'm 11 weeks post op for typical carcinoid ive had 2 lobes removed I'm tumor was fully removed all nodes clear but experiencing tiredness last 3 weeks but my b12 is low and my folic acid will this be the cause of my tiredness and low energy

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jessie1990 | @jessie1990 | Mar 6 11:34am
In reply to @ggiinnaa "No idea. It’s been 3 years since two of my lines were removed for typical carcinoid..." + (show)
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No idea. It’s been 3 years since two of my lines were removed for typical carcinoid tumors. I still have some but I am now on Ct scan schedule of once a year. I am leading a normal life but
huff and puff some after climbing stairs
Wishing you hugs and
luck in this process

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@ggiinnaa yes walking stairs catches me to and hills.. thank you so much 💓

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stephanieann | @stephanieann | Mar 9 4:32am

Hi,
I am 76 and have typical 19 mm carcinoid lung net they want to do lobectomy this coming month. I have been putting it off for various medical and personal reasons. I was dotatate positive but they say I am not having carcinoid syndrom, although I do get flushing at times and diarhea . I get short of breath with even mild exertion, not all the time though. I am also quite fatigued. They are going to do a CT scan with contrast to determine if it is my heart. Doctor has told me symptoms probably not due to the lung net, I am concerned that I will be even more fatigued and short of breath after the lobectomy. Did people find that their shortness of breath eventually got better after the surgery?

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haelsky | @haelsky | 6 days ago
In reply to @stephanieann "Hi, I am 76 and have typical 19 mm carcinoid lung net they want to do..." + (show)
Profile picture for stephanieann @stephanieann

Hi,
I am 76 and have typical 19 mm carcinoid lung net they want to do lobectomy this coming month. I have been putting it off for various medical and personal reasons. I was dotatate positive but they say I am not having carcinoid syndrom, although I do get flushing at times and diarhea . I get short of breath with even mild exertion, not all the time though. I am also quite fatigued. They are going to do a CT scan with contrast to determine if it is my heart. Doctor has told me symptoms probably not due to the lung net, I am concerned that I will be even more fatigued and short of breath after the lobectomy. Did people find that their shortness of breath eventually got better after the surgery?

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@stephanieann
I am age 78 yrs old.
I had a lobectomy in 9/2025
Recovery takes time.
Interventional pulmonologist says it takes usually a year.
I have intermittent shortness of breath which is not a major issue.
I am glad I was able to have the surgery. I am able to walk miles and I am less fatigued.
Trust your medical team!
I hope all goes well.

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