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DiscussionWhat is the surveillance protocol for typical pulmonary NETs?
Neuroendocrine Tumors (NETs) | Last Active: 18 hours ago | Replies (11)Comment receiving replies
Replies to "I have typical carcinoids and DIPNECH (50+ nodules) so they can't remove them. The largest one..."
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@californiazebra looks like you are in CA? Who are your specialists? I am recently diagnosed with Dipnich after my surgery to remove a 1.1cm typical carcinoid in my RML as well as surrounding lymph nodes. Out of 7, the 3 closest were positive as was an area of my RLL near the tumor. That was also removed and I was told the surgeon got clean margins. I’m told I will likely need the injections for the rest of my life. I’m a single mom to a teen and in my early 50’s.