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DiscussionHas anyone ever been cured of MAC?
MAC & Bronchiectasis | Last Active: Mar 9 9:07am | Replies (62)Comment receiving replies
Replies to "@sueinmn im seeing a infectious diseases doctor. I had a coronary calcium score done as a..."
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@dawnlorello Hello Dawn, I love your description about being proactive in managing your rheumatoid arthritis, congratulations on making the big changes.
We are hearing more and more about incidental findings of lung nodules, finally diagnosed as MAC or bronchiectasis, when people get heart scans or lung scans. And of course, being a more rare disease, often patients get little information from the original doc and become scared when they start reading on the internet.
It is great that you found our Mayo Connect group, because we can help you sort everything out. You will also see that many of us live quite full lives in spite of yet another medical condition. It's great that you found a knowledgeable infectious disease specialist who didn't jump right to "let's start antibiotics" and instead counseled you to watch and wait. MAC is an infection, but the underlying lung disease is bronchiectasis, so it is important to monitor your lung function, and probably start a plan of airway clearance to keep it and the MAC from progressing.
I know your ID doctor mentioned National Jewish Health (NJH), but did they also recommend a local pulmonologist? That would be a good place to start.