Diagnosed with Ameloblastoma
Reaching out to anyone else wanting to connect with others diagnosed with Ameloblastoma and the journey involved.
My background, diagnosed February 2021, segmental mandibulectomy, fibula free flap March 2021.
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@tdg04 Drs Lee and Rabinowitz at VCU in Richmond VA did my mandible flap surgery. They are excellent. Let me know if you have any questions.
My jaw fractured from the effects of radiation for tonsil cancer. I've been through it from soup to nuts. I just started the process for my prosthetic teeth.
God bless and please let me know if you have any questions.
Hi @pauley
How long did it take after radiation treatments that your jaw fractured and also your teeth went bad?
Thanks
Hi @roblem
About 2 years. My teeth and gums were not in the best shape to begin with.
September 2022 was my last radiation treatment. Before they would start radiation, I had to have 5 teeth pulled.
I was able to get partial upper and lower plate dentures. Then in August of 2024 I had one of my bottom teeth still left give me some issues. Per the dentist, no big deal. He pulled it then added a tooth to the lower partial and all was good. I later learned that HBO therapy should have been prescribed.
May 2025, I wake up with what I didn't know at the time was a fractured jaw. It looked liked I had half a golf ball under my cheek plus the pain. It fractured at the spot where the tooth was pulled. No blood flow, no healing.
August 2025, Jaw reconstruction. 9 days in the hospital, 6 in CCU.
February, 2 2026, Outpatient Debulking surgery to shave back the new gums and also to expose the post for my new bottom prosthetic teeth.
Tomorrow 3-9-2026, I have an appt for the 2nd impressions for my new teeth. During the mandible flap reconstruction, they inserted post for prosthetic bottom teeth. By July, I should have teeth again!
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Thanks and good luck with the new teeth in July. Just in time for summer.