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Has anyone had Paget's disease of the vulva?

Gynecologic Cancers | Last Active: Apr 22 11:26am | Replies (232)

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Profile picture for oktave20 @oktave20

@bouf1948 Hi there, I only found this site a week ago and see most of the women have had surgery without doing the cream first. I live in Australia and was diagnosed with Pagets last August but decided to do the cream first. I am clear as of two months ago. I did 7 weeks (3 nights, Monday, Tuesday and Friday) with the cream then stopped for 1 week did another 3 weeks then again stopped for a week then 10 days and now 2 months clear.
Fingers crossed it doesn't return any time soon.
If you decide to use the cream make sure it is only a thin layer of cream.

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Replies to "@bouf1948 Hi there, I only found this site a week ago and see most of the..."

@oktave20 were you able to sit and get up and function using the cream?

@oktave20 were you able to sit, drive, get up out of a chair? How would you rate the pain level. I think I will opt for cream next time. This is unbearable.