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My Story So Far - 53yo / PSA 130

Prostate Cancer | Last Active: Apr 22 7:53pm | Replies (28)

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Excellent, calm, objective, and hopeful post - thank you. We "all" were presented and discussed the options, and made our best choice. I was quickly and firmly guided by my physician to have the radical prostatectomy. I was "barely" a Gleason 3+4=7 with only 6-10% of "4" cells. I was very close to still being a 3+3=6. My urologist flat-out said that he never does Active Surveillance (AS), which only allows the cancer to grow, get worse, and perhaps spread to lymph nodes and elsewhere after it breaks out of the membranous capsule. That is known as "Extraprostatic Extension" (EPE), and when that happens, all bets are off. Your urologist really won't know "where" and "how far" the cancer spread. You'll likely end up with the phrase "surgical margins" on your post-surgical pathology report, which means the urologist left cancerous tissue in you which, along with your rated level or type of cancer, so you may see the cancer return within the first five years. If your disease is still prostate-confined, you stand a very good chance of success without reoccurrence. If you wait, or have ineffectual radiation that still allows the cancer to spread within five years, it may have spread to your lymph nodes, bladder, urethra, and even bones by then. That is why my urologist does not believe in AS: "you're just giving your cancer two years to grow and get worse." Active Surveillance often stops abruptly at 6 - 9 months because the PSA level keeps rising significantly, and the doctor says "we're done with AS...time to remove your prostate." Good luck to you...keep us posted as to your decisions and progress, especially what your surgical pathology report revealed about your cancer...if you have the surgery.

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Replies to "Excellent, calm, objective, and hopeful post - thank you. We "all" were presented and discussed the..."

@rlpostrp ....EXCELLENT advice and explanation. I was 3+4 in the beginning then after 18 months it had progressed to a 4+3 and after RARP (4 months post 2nd biopsy) pathology had moved it to a 4+4. Luckily and I mean VERY LUCKILY, after surgery my margins were clear (negative) with no EPE. I had pushed the envelope as long as I could, not intentionally, but having it removed sooner rather than later is a solid decision, given all of the factors.