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DiscussionSevere chronic pain and Intrathecal pain pump
Chronic Pain | Last Active: Mar 24 9:25am | Replies (60)Comment receiving replies
Replies to "@alexandercrps I was wondering what your daily dose is that went to soft tissue for 6..."
@bilt4pain
A correction from previous post: When I talk about my dosage, I meant ca 0,3 ml pr 24 hour. Not 3 ml.
Sorry my brain is a bit fried and I am not having the best day. My apologies!
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@bilt4pain @bilt4pain Let me try to explain: a pocket fill is when ALL the medicine goes straight into your tissue - all at once. 20 ml worth of highly concentrated designed only for intrathecal use will likely OD you very quickly.
Mine was not a pocket fill (which is a human error btw). My pump dripps tiny amounts of medicine through the catheter with 6 preprogrammed boluses pr 24 hours. I don’t have the dosage in my head but is singel digit milliliters of medicine, a piece of a drop of water.
In my case the catheter tip fell out of my spine. My pump still kept on dripping, but now. it sent very tiny amounts of meds into my soft tissue (as opposed to a pocket fill, which will dum all the meds, i.e the full 20ml all at once into my muscles in my lower back. I only got the tiny drip that was programmed into my back, not the whole flask all at once. Did that clarify things? The way I noticed smth was off was the most awful itch I ever had (called the morphine itch) but I had no explanation for why this kept on happening. Without putting the pieces together I remember having terrible itching when I got a bolus. Back then I just put benadryl cream on the itcy area and just learned to lived with it, just as I have adjusted my life to living on painscale 6-7. I hope this clarifies things, also I don’t remember the exact dose I have or had but again, it is a tiny amount that gets in there. I have a 20 ml pump so I have 20 ml of meds. I refill my pump every 7-8 weeks which gives you an idea of the daily dose. I reckon I get somewhere in the range of 3,3 ml of pump meds distributed over a 24 period. I believe I was at a slightly lower dose back then as we were still titating up the clonedine. My best guess is that I got ca 3ml pump meds distributed over 24 hours via the catheter. It wasn’t fun and I basically had to redo the whole thing which is a new operation and all the pain and discomfort connected to that. So this pump can be very challenging in a number of ways and it is important that people do their research when considering this pump. I think the patient based info is much more reliable than the glossy doctor version. Those medical reps from Medtronics and other companies like them are pieces of work. I would not trust them as much as I would trust someone who has experienced having this pump themselves. However people with pumps are difficult to find, especially one that is willing to share. I am one of those so ask any question and I will do my best to answer.