← Return to Severe chronic pain and Intrathecal pain pump

Discussion
kaki068 avatar

Severe chronic pain and Intrathecal pain pump

Chronic Pain | Last Active: Mar 24 9:25am | Replies (60)

Comment receiving replies
Profile picture for alexandercrps @alexandercrps

@heisenberg34 I deal with pretty extreme pain, I have CRPS type 2 and it is relentless. It has taken everything I had and loved away from me. 6 years into this nightmare and for me a 6 is a lot better than a 9 which is would be without all
my implants and orals. The tingling you’re talking about sounds like nerve pain, I have that constantly in my left
leg. But I agree with you, a 6 is not very low. I even have an SCS and that together with pump and orals reduces my pain enough so I can at least walk on my foot now (I almost amputated my fot it in 2022) However when you deal with this extreme constant hellish levels of pain as do, every point down on that scale really matters. Also it is weird but when you deal with this level of pain you somehow get used to it. I am pretty much. never present for big events and celebrations etc as my central nervous system go into mayhem mode when life happens. Consequently I don’t have much of a life anymore, I am bedridden often and I rarely travel, not able to sit with my foot down strapped to a chair for veey long so flying is a no go. Lastly I am sorry the pump has been such a disappointment for you. I hope your doc can find ways to improve your quality of life. Wishing you well my friend. Stay strong albeit that is not easy these days with the current administration, it makes everything harder and my pain higher with so much stressful events and terrible news we are served at every hour..it sucks to be in the US right now. It sucks that I cannot leave my city for max 3-4 weeks at the time due to med and pump refills. So I am stuck here and it is not a good feeling. It is hard to feel good about anything these days..sorry for the rant. I hope this message finds you somewhat “well”.

Jump to this post


Replies to "@heisenberg34 I deal with pretty extreme pain, I have CRPS type 2 and it is relentless...."

@alexandercrps Hey. I’ve been away for a bit because of traveling over to Mayo Clinic in Jacksonville for thoracic injections. {sigh} I completely understand every word you posted about being unable to leave the house. My husband drives me everywhere now to all of my appointments. My back pain has gone from completely horrible to totally excruciating in the past several months. I’m getting really bad electric shock type pain at different places from my thoracic to my lumbar. They hit me randomly even if I move the smallest amount of. The pain radiates into my ribs; into my hips… I can hardly move much now. I’m getting strange pressure feelings at different places in my spine, as well. So basically I’m a complete shut-in now. Seven years of this pain and it just keeps getting worse. It’s been completely devastating. It’s destroyed my life. My pain medicine doctor where I live said he has prescribed all he is going to and I feel so dismissed by every other doctor I’ve seen. It’s incredibly frustrating and infuriating and depressing. I see my pain medicine doctor over at Mayo in Jacksonville in a few weeks so my husband and I are really hoping I’ll be able to get a pain pump trial very soon and keep our fingers crossed that it will work out for me. Honestly I’m kind of at a loss for what else can be done. Sorry to ramble…. it’s been a very painful and tiring day.