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Severe chronic pain and Intrathecal pain pump
Chronic Pain | Last Active: Mar 24 9:25am | Replies (60)Comment receiving replies
@alexandercrps Getting your pain down to a six seems like not much relief, unless you pain is between an 8-10 without all the boluses. I had to go back to my PM doc to get the pump reduced to about a 3.5. Getting nauseous last night was really upsetting. I only had some wonton soup and a couple of crackers. Better this morning, but have this very uncomfortable buzzing/tingling in my feet which I have not had before. Looks like I might have to get this pump removed. It hasn't done anything in three years. Boo-Hiss!
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@heisenberg34 I deal with pretty extreme pain, I have CRPS type 2 and it is relentless. It has taken everything I had and loved away from me. 6 years into this nightmare and for me a 6 is a lot better than a 9 which is would be without all
my implants and orals. The tingling you’re talking about sounds like nerve pain, I have that constantly in my left
leg. But I agree with you, a 6 is not very low. I even have an SCS and that together with pump and orals reduces my pain enough so I can at least walk on my foot now (I almost amputated my fot it in 2022) However when you deal with this extreme constant hellish levels of pain as do, every point down on that scale really matters. Also it is weird but when you deal with this level of pain you somehow get used to it. I am pretty much. never present for big events and celebrations etc as my central nervous system go into mayhem mode when life happens. Consequently I don’t have much of a life anymore, I am bedridden often and I rarely travel, not able to sit with my foot down strapped to a chair for veey long so flying is a no go. Lastly I am sorry the pump has been such a disappointment for you. I hope your doc can find ways to improve your quality of life. Wishing you well my friend. Stay strong albeit that is not easy these days with the current administration, it makes everything harder and my pain higher with so much stressful events and terrible news we are served at every hour..it sucks to be in the US right now. It sucks that I cannot leave my city for max 3-4 weeks at the time due to med and pump refills. So I am stuck here and it is not a good feeling. It is hard to feel good about anything these days..sorry for the rant. I hope this message finds you somewhat “well”.